{"id":3059,"date":"2025-09-19T11:12:19","date_gmt":"2025-09-19T11:12:19","guid":{"rendered":"https:\/\/occurtrial.co.uk\/pacjenci-i-spoleczenstwo\/"},"modified":"2026-01-27T11:55:59","modified_gmt":"2026-01-27T11:55:59","slug":"pacjenci-i-spoleczenstwo","status":"publish","type":"page","link":"https:\/\/occurtrial.co.uk\/pl\/pacjenci-i-spoleczenstwo\/","title":{"rendered":"Pacjenci i spo\u0142ecze\u0144stwo"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"3059\" class=\"elementor elementor-3059 elementor-1281\" data-elementor-post-type=\"page\">\n\t\t\t\t<div data-ha-partstyle=\"nasa\" data-ha-partcolor=\"\" data-ha-partopacity=\"\" data-ha-partdirection=\"bottom\" class=\"elementor-element elementor-element-818801f ha-particle-yes e-flex e-con-boxed ha-particle-adv-no e-con e-parent\" data-id=\"818801f\" data-element_type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-14d3ebb elementor-widget elementor-widget-heading\" data-id=\"14d3ebb\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa <\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-34a976f e-flex e-con-boxed e-con e-parent\" data-id=\"34a976f\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-fdc9e72 elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"fdc9e72\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\">Czym jest zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa?<\/span>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-eb63c24 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"eb63c24\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-b2ab959 elementor-widget elementor-widget-text-editor\" data-id=\"b2ab959\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa (PPI) w badaniach to badania prowadzone <strong>z<\/strong> lub przez pacjent\u00f3w lub cz\u0142onk\u00f3w spo\u0142ecze\u0144stwa, a nie <strong>wobec<\/strong>, <strong>o<\/strong> lub <strong>dla<\/strong> nich. Zapewnia to, \u017ce badania s\u0105 prowadzone z my\u015bl\u0105 o wszystkich i dla wszystkich. <\/p><p>Poprzez zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa w projektowanie, realizacj\u0119 i publikacj\u0119 bada\u0144 klinicznych, badania staj\u0105 si\u0119 bardziej trafne, akceptowalne i dost\u0119pne dla potencjalnych uczestnik\u00f3w. Pomaga to zidentyfikowa\u0107 kwestie najwa\u017cniejsze i najbardziej istotne dla os\u00f3b bezpo\u015brednio dotkni\u0119tych okre\u015blonymi schorzeniami i ich leczeniem. <\/p><p>Wi\u0119cej informacji na temat PPIE mo\u017cna znale\u017a\u0107 pod nast\u0119puj\u0105cymi linkami:<\/p><p><span style=\"text-decoration: underline;\"><a href=\"https:\/\/www.google.com\/url?q=https%3A%2F%2Fwww.nihr.ac.uk%2Fpatients-carers-and-the-public%2Fi-want-to-help-with-research%2F&amp;sa=D&amp;sntz=1&amp;usg=AOvVaw2aK1FcCMrMJAYyN8WUHmJX\" target=\"_blank\" rel=\"noopener\">https:\/\/www.nihr.ac.uk\/patients-carers-and-the-public\/i-want-to-help-with-research\/<\/a><\/span><\/p><p><a href=\"https:\/\/bepartofresearch.nihr.ac.uk\/campaigns\/be-part-of-research-2024\/\" target=\"_blank\" rel=\"noopener\"><u>https:\/\/bepartofresearch.nihr.ac.uk\/campaigns\/be-part-of-research-2024\/<\/u><\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1eca5a9 e-flex e-con-boxed e-con e-parent\" data-id=\"1eca5a9\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-33ceed3 elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"33ceed3\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\">Jak PPI pomog\u0142o w kszta\u0142towaniu badania OCCUR?<\/span>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-534894f elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"534894f\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-c6669f4 elementor-widget elementor-widget-text-editor\" data-id=\"c6669f4\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Zaanga\u017cowanie i Uczestnictwo Pacjent\u00f3w i Spo\u0142ecze\u0144stwa (PPIE) by\u0142o uwzgl\u0119dniane na wszystkich etapach naszego wniosku o finansowanie. Nasi \u015bwieccy wsp\u00f3\u0142wnioskodawcy i cz\u0142onkowie naszej grupy PPIE uwa\u017caj\u0105, \u017ce badanie jest wa\u017cne, pomogli w jego zaprojektowaniu i wsp\u00f3\u0142tworzyli to Streszczenie w Prostym J\u0119zyku. Zorganizowali\u015bmy dwa spotkania grupy PPIE z dziewi\u0119cioma osobami maj\u0105cymi do\u015bwiadczenie z zaostrzeniami dny moczanowej z region\u00f3w West Midlands, East Midlands i North West Anglii. Pomogli nam okre\u015bli\u0107 rezultaty, kiedy powinny by\u0107 zbierane dane i jak d\u0142uga powinna by\u0107 obserwacja. Nasz kierownik PPIE b\u0119dzie wspiera\u0142 wszystkie dzia\u0142ania PPIE w trakcie badania. Podczas badania, w naszych spotkaniach zespo\u0142u badawczego i spotkaniach zewn\u0119trznej grupy doradczej b\u0119d\u0105 uczestniczy\u0107 przedstawiciele spo\u0142ecze\u0144stwa. B\u0119d\u0105 oni zaanga\u017cowani na wszystkich etapach badania, w tym w przygotowanie wniosku etycznego, pomoc w zrozumieniu wynik\u00f3w, tworzenie zrozumia\u0142ych komunikat\u00f3w wyja\u015bniaj\u0105cych ustalenia oraz doradzanie w zakresie szerokiego rozpowszechniania wynik\u00f3w.      <\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-e14b996 e-flex e-con-boxed e-con e-parent\" data-id=\"e14b996\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-29167cb elementor-invisible elementor-widget elementor-widget-heading\" data-id=\"29167cb\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;fadeIn&quot;}\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<span class=\"elementor-heading-title elementor-size-default\">Jak mog\u0119 zaanga\u017cowa\u0107 si\u0119 w PPI? <\/span>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8f64008 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"8f64008\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a2c7ce0 elementor-widget elementor-widget-text-editor\" data-id=\"a2c7ce0\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p>Ka\u017cdy mo\u017ce zosta\u0107 cz\u0142onkiem grupy PPIE i mo\u017ce oferowa\u0107 cenne opinie na temat wszystkich aspekt\u00f3w prowadzenia naszych bada\u0144; od sposobu projektowania bada\u0144 po to, ile badanie wymaga od uczestnik\u00f3w i czy ulotki informacyjne dla pacjent\u00f3w, formularze zgody i kwestionariusze s\u0105 \u0142atwe do zrozumienia, by wymieni\u0107 tylko kilka!<\/p><p>Je\u015bli chcesz wyrazi\u0107 swoj\u0105 opini\u0119 i mie\u0107 wp\u0142yw, skontaktuj si\u0119 z Jednostk\u0105 Bada\u0144 Klinicznych Uniwersytetu Keele telefonicznie, mailowo lub przez media spo\u0142eczno\u015bciowe:<\/p><p>Telefon: 01782 732950<\/p><p>Email: <a href=\"mailto:ctu.inspire@keele.ac.uk\">ctu.inspire@keele.ac.uk<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d464c22 e-flex e-con-boxed e-con e-parent\" data-id=\"d464c22\" data-element_type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-e6938a3 elementor-shape-rounded elementor-grid-0 e-grid-align-center elementor-widget elementor-widget-social-icons\" data-id=\"e6938a3\" data-element_type=\"widget\" data-widget_type=\"social-icons.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-social-icons-wrapper elementor-grid\" role=\"list\">\n\t\t\t\t\t\t\t<span class=\"elementor-grid-item\" role=\"listitem\">\n\t\t\t\t\t<a class=\"elementor-icon elementor-social-icon elementor-social-icon-facebook elementor-repeater-item-65253b8\" href=\"https:\/\/www.facebook.com\/KeeleCTU\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-screen-only\">Facebook<\/span>\n\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fab-facebook\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M504 256C504 119 393 8 256 8S8 119 8 256c0 123.78 90.69 226.38 209.25 245V327.69h-63V256h63v-54.64c0-62.15 37-96.48 93.67-96.48 27.14 0 55.52 4.84 55.52 4.84v61h-31.28c-30.8 0-40.41 19.12-40.41 38.73V256h68.78l-11 71.69h-57.78V501C413.31 482.38 504 379.78 504 256z\"><\/path><\/svg>\t\t\t\t\t<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t\t\t<span class=\"elementor-grid-item\" role=\"listitem\">\n\t\t\t\t\t<a class=\"elementor-icon elementor-social-icon elementor-social-icon-instagram elementor-repeater-item-5f7e097\" href=\"https:\/\/www.instagram.com\/keele_ctu\/\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-screen-only\">Instagram<\/span>\n\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fab-instagram\" viewBox=\"0 0 448 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M224.1 141c-63.6 0-114.9 51.3-114.9 114.9s51.3 114.9 114.9 114.9S339 319.5 339 255.9 287.7 141 224.1 141zm0 189.6c-41.1 0-74.7-33.5-74.7-74.7s33.5-74.7 74.7-74.7 74.7 33.5 74.7 74.7-33.6 74.7-74.7 74.7zm146.4-194.3c0 14.9-12 26.8-26.8 26.8-14.9 0-26.8-12-26.8-26.8s12-26.8 26.8-26.8 26.8 12 26.8 26.8zm76.1 27.2c-1.7-35.9-9.9-67.7-36.2-93.9-26.2-26.2-58-34.4-93.9-36.2-37-2.1-147.9-2.1-184.9 0-35.8 1.7-67.6 9.9-93.9 36.1s-34.4 58-36.2 93.9c-2.1 37-2.1 147.9 0 184.9 1.7 35.9 9.9 67.7 36.2 93.9s58 34.4 93.9 36.2c37 2.1 147.9 2.1 184.9 0 35.9-1.7 67.7-9.9 93.9-36.2 26.2-26.2 34.4-58 36.2-93.9 2.1-37 2.1-147.8 0-184.8zM398.8 388c-7.8 19.6-22.9 34.7-42.6 42.6-29.5 11.7-99.5 9-132.1 9s-102.7 2.6-132.1-9c-19.6-7.8-34.7-22.9-42.6-42.6-11.7-29.5-9-99.5-9-132.1s-2.6-102.7 9-132.1c7.8-19.6 22.9-34.7 42.6-42.6 29.5-11.7 99.5-9 132.1-9s102.7-2.6 132.1 9c19.6 7.8 34.7 22.9 42.6 42.6 11.7 29.5 9 99.5 9 132.1s2.7 102.7-9 132.1z\"><\/path><\/svg>\t\t\t\t\t<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t\t\t<span class=\"elementor-grid-item\" role=\"listitem\">\n\t\t\t\t\t<a class=\"elementor-icon elementor-social-icon elementor-social-icon-x-twitter elementor-repeater-item-8bc298e\" href=\"https:\/\/x.com\/Keele_CTU\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-screen-only\">X-twitter<\/span>\n\t\t\t\t\t\t<svg aria-hidden=\"true\" class=\"e-font-icon-svg e-fab-x-twitter\" viewBox=\"0 0 512 512\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\"><path d=\"M389.2 48h70.6L305.6 224.2 487 464H345L233.7 318.6 106.5 464H35.8L200.7 275.5 26.8 48H172.4L272.9 180.9 389.2 48zM364.4 421.8h39.1L151.1 88h-42L364.4 421.8z\"><\/path><\/svg>\t\t\t\t\t<\/a>\n\t\t\t\t<\/span>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa Czym jest zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa? Zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa (PPI) w badaniach to badania prowadzone z lub przez pacjent\u00f3w lub cz\u0142onk\u00f3w spo\u0142ecze\u0144stwa, a nie wobec, o lub dla nich. Zapewnia to, \u017ce badania s\u0105 prowadzone z my\u015bl\u0105 o wszystkich i dla wszystkich. Poprzez zaanga\u017cowanie pacjent\u00f3w i spo\u0142ecze\u0144stwa w projektowanie, realizacj\u0119 [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"_uf_show_specific_survey":0,"_uf_disable_surveys":false,"footnotes":""},"class_list":["post-3059","page","type-page","status-publish","hentry"],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/pages\/3059","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/comments?post=3059"}],"version-history":[{"count":1,"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/pages\/3059\/revisions"}],"predecessor-version":[{"id":3065,"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/pages\/3059\/revisions\/3065"}],"wp:attachment":[{"href":"https:\/\/occurtrial.co.uk\/pl\/wp-json\/wp\/v2\/media?parent=3059"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}